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 Post subject: This is GREAT news.
PostPosted: Tue Nov 25, 2008 9:40 pm 
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I think this is great.

Discuss.

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 Post subject: Re: This is GREAT news.
PostPosted: Tue Nov 25, 2008 11:22 pm 
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Can they have one for Sickel Cell? (sp?)
BTW, Goon I know that just took someone we both knew, so I'm not making light of it either.

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 Post subject: Re: This is GREAT news.
PostPosted: Wed Nov 26, 2008 12:50 pm 
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no worries, leedog.

were you at the benefit?

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 Post subject: Re: This is GREAT news.
PostPosted: Wed Nov 26, 2008 5:30 pm 
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Just the fact that someone motioned for this to be brought up to council is sickening.

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 Post subject: Re: This is GREAT news.
PostPosted: Wed Nov 26, 2008 11:45 pm 
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goon attack wrote:
no worries, leedog.

were you at the benefit?


No, I couldn't make it.

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 Post subject: Re: This is GREAT news.
PostPosted: Thu Nov 27, 2008 7:59 am 
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It went really well. It was a great turnout. I got to catch up a little with people I haven't seen for like 10 years or so.

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 Post subject: Re: This is GREAT news.
PostPosted: Thu Nov 27, 2008 10:07 pm 
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StillBleedingBlue wrote:
Just the fact that someone motioned for this to be brought up to council is sickening.


I know I shouldn't be surprised by humanity anymore, but sometimes I still am. Just unbelievably stupid.

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 Post subject: Re: This is GREAT news.
PostPosted: Wed Dec 10, 2008 10:43 am 
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Anybody here know anyone with CF? It's pretty brutal, and I get the "privilege" of seeing it every day. The "only effects white people" is a bit of a myth, though it is rare in asians and has a lower incidence in African Americans... And it doesn't effect predominantly men. I don't know where the hell they got that from. Men tend to live longer... So maybe there is a higher living male population, but gender doesn't matter as far as inheritance.

The research that has been done in the name of CF has really brought some major breakthroughs in all genetic illnesses. And the CF Foundation is one of the absolute best run charities in the world.

CF treatment has come so far, from a life expectancy of 14 in 1980 to 34-37 today. They've got some pretty cool treatments in the pipeline. Hopefully one of them will make it out of phase 2. Still, it is scary knowing that one bad lung infection and it can take someone away from you. The patients really have to stay on top of every little thing. It seems like a lot of them self diagnose something as minor or a cold, and the next thing they know, they've got something very serious and life threatening.

I'm biased and of course I'm frustrated that this happened, but very few diseases are truly "equal opportunity", and the fact is that most CF research benefits all genetic and autoimmune disorders because of the vast number of systems CFers have. I can understand if they came out and said that starting next year they want to start rotating charities--I'm fine with that--but the way they went about this just makes them look retarded.

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 Post subject: Re: This is GREAT news.
PostPosted: Wed Dec 10, 2008 2:46 pm 
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Rocketpop wrote:
Anybody here know anyone with CF? It's pretty brutal,


Not as brutal as having affirmative action, hate crimes legislation, and welfare on your side.

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