Anybody here know anyone with CF? It's pretty brutal, and I get the "privilege" of seeing it every day. The "only effects white people" is a bit of a myth, though it is rare in asians and has a lower incidence in African Americans... And it doesn't effect predominantly men. I don't know where the hell they got that from. Men tend to live longer... So maybe there is a higher living male population, but gender doesn't matter as far as inheritance.
The research that has been done in the name of CF has really brought some major breakthroughs in all genetic illnesses. And the CF Foundation is one of the absolute best run charities in the world.
CF treatment has come so far, from a life expectancy of 14 in 1980 to 34-37 today. They've got some pretty cool treatments in the pipeline. Hopefully one of them will make it out of phase 2. Still, it is scary knowing that one bad lung infection and it can take someone away from you. The patients really have to stay on top of every little thing. It seems like a lot of them self diagnose something as minor or a cold, and the next thing they know, they've got something very serious and life threatening.
I'm biased and of course I'm frustrated that this happened, but very few diseases are truly "equal opportunity", and the fact is that most CF research benefits all genetic and autoimmune disorders because of the vast number of systems CFers have. I can understand if they came out and said that starting next year they want to start rotating charities--I'm fine with that--but the way they went about this just makes them look retarded.
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